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1 – 10 of 17Samantha Flynn, Sue Caton, Amanda Gillooly, Jill Bradshaw, Richard P. Hastings, Chris Hatton, Andrew Jahoda, Peter Mulhall, Stuart Todd, Stephen Beyer and Laurence Taggart
The purpose of this paper is to present data about the experiences of adults with learning disabilities during the COVID-19 pandemic across the UK.
Abstract
Purpose
The purpose of this paper is to present data about the experiences of adults with learning disabilities during the COVID-19 pandemic across the UK.
Design/methodology/approach
Interviews were conducted with 609 adults with learning disabilities. Family carers and support staff of another 351 adults with learning disabilities completed a proxy online survey. The data were collected between December 2020 and February 2021 and concerned both worries/negatives and anything positive that had happened because of the COVID-19 pandemic.
Findings
Social isolation was the most commonly reported worry/negative for adults with learning disabilities, with other frequently reported worries/negatives including: changes to/loss of routine; loss of support/services; and decreased health/well-being/fitness. A large proportion of participants indicated that nothing positive had happened because of COVID-19, but some positives were reported, including: digital inclusion; more time spent with important people; improved health/well-being/fitness; and, a slower pace of life.
Practical implications
Future pandemic planning must ensure that adults with learning disabilities are supported to maintain social contact with the people who matter to them and to support their health and well-being (including maintaining access to essential services and activities). Some adults with learning disabilities may benefit from additional support to improve their digital confidence and access. This may in turn enable them to maintain contact with family, friends and support services/activities.
Originality/value
This is the largest study about the experiences of adults with learning disabilities during the COVID-19 pandemic in the UK. The authors primarily collected data directly from adults with learning disabilities and worked with partner organisations of people with learning disabilities throughout the study.
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Samantha Flynn, Chris Hatton, Richard P. Hastings, Nikita Hayden, Sue Caton, Pauline Heslop, Andrew Jahoda, Stuart Todd, Edward Oloidi, Stephen Beyer, Peter Mulhall and Laurence Taggart
This paper aims to present data about access to and use of health and social care services by adults with learning disabilities during the COVID-19 pandemic in England, Northern…
Abstract
Purpose
This paper aims to present data about access to and use of health and social care services by adults with learning disabilities during the COVID-19 pandemic in England, Northern Ireland, Scotland and Wales.
Design/methodology/approach
Data were collected in three waves between December 2020 and September 2021 and concerned the use of health and social care services during the COVID-19 pandemic. Data were collected at one or more time-points directly from 694 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 447 adults with learning disabilities.
Findings
Many people with learning disabilities who reported regularly accessing services/supports pre-pandemic were not receiving them during the timeframe of this study. There were indications of increasing access to some services and supports between Wave 2 and 3, but this was not universal.
Practical implications
People in Cohort 2, who were likely to have severe/profound learning disabilities, were less frequently reported to access online community activities than people in Cohort 1, which is likely to exacerbate existing social isolation for this cohort and their family carers. Service providers should seek to ensure equitable access to services and activities for all people with learning disabilities in the event of future lockdowns or pandemics.
Originality/value
This is the largest longitudinal study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. We primarily collected data directly from adults with learning disabilities and worked with partner organisations of people with learning disabilities and family members throughout the study.
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The aim of this paper is to provide readers with an overview of service provision for people with learning disabilities and psychiatric disorders in Northern Ireland. The first…
Abstract
The aim of this paper is to provide readers with an overview of service provision for people with learning disabilities and psychiatric disorders in Northern Ireland. The first part of this paper briefly describes how learning disability services are structured, and highlights how service provision across Northern Ireland is set to dramatically change as a result of Equal Lives (Department of Health, Social Services and Public Safety, 2005) and overall healthcare modernisation. Second, this paper will explore the prevalence rates of psychiatric disorders in people with learning disabilities in light of recent Northern Irish studies. Third, a review of current psychiatric service provision is provided, this is followed by an examination of recent hospital and community developments. Finally, this paper describes some educational and research developments that have focused on the mental health of people with learning disabilities.
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Laurence Taggart, Adam Huxley and Gill Baker
This paper offers readers a review of the literature on alcohol and illicit drug misuse in people with learning disabilities, focusing on six key areas. First, clarity is provided…
Abstract
This paper offers readers a review of the literature on alcohol and illicit drug misuse in people with learning disabilities, focusing on six key areas. First, clarity is provided on the definition of ‘misuse’. Second, prevalence rates are examined along with the methodological difficulties involved in such studies, the authors arguing that prevalence rates are higher than current estimates. Third, the authors explore the relationship between the intra‐ and inter‐personal risk factors. Fourth, the nature of the substance misuse is explored, with a focus on offending behaviour. Fifth, a range of treatment modalities are described with a series of recommendations for more robust evidence‐based interventions. Last, the authors explore the gaps in policy that lead to a dearth in service provision as well the barriers which people with learning disabilities face on entering treatment services. The paper cites four innovative projects that address this population's needs in England, and illustrates how Northern Ireland has positioned the needs of this hidden population within the Department of Health, Social Services and Public Safety (Northern Ireland).
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Laurence Taggart, R McMillan and Annette Lawson
This study examined the personal characteristics and social context of two groups of women with learning disabilities and psychiatric disorders who resided in some form of…
Abstract
This study examined the personal characteristics and social context of two groups of women with learning disabilities and psychiatric disorders who resided in some form of community residential facility. One group of women had been admitted to hospital in the past 12 months (N = 20) and the other had been maintained in the community without any admissions (N = 33). A prospective natural group comparison design was employed over a 12‐month period to study any differences between the groups. Data was collected from the women's key workers using a pro forma and three standardised instruments: Index of Social Competence, Aberrant Behaviour Checklist and the PAS‐ADD Checklist. The groups were matched on age and level of learning disabilities. Differences were found between the groups' behavioural and psychiatric profiles. Anti‐psychotic medication was the first line of treatment. A non‐significant trend was found on negative life experiences, and a binary logistic regression analysis confirmed that high levels of challenging behaviour and having behavioural/mental health management strategies in place predicted hospital admission. The findings of this study are discussed and improvements are explored.
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Martina Conway and Laurence Taggart
There is an ongoing debate about how specialist psychiatric services for people with learning disabilities and mental health problems should be developed. Nursing personnel are…
Abstract
There is an ongoing debate about how specialist psychiatric services for people with learning disabilities and mental health problems should be developed. Nursing personnel are the largest professional group involved with care provision, yet to date there has been little research addressing the knowledge and experiences of learning disability and mental health nurses co‐working with this population. This aim of this study was to explore the perceptions of these nurses, using qualitative methods. The findings are discussed in relation to A Vision for Change (DoHC, 2006) and in comparison with the innovative collaborative working that has occurred with the UK.
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Eddie Chaplin and Laurence Taggart
This article aims to bring readers up to date with policy developments in England and Northern Ireland in the last two years since the journal first reported on these issues.
Abstract
Purpose
This article aims to bring readers up to date with policy developments in England and Northern Ireland in the last two years since the journal first reported on these issues.
Design/methodology/approach
As well as looking at changes to policy and legislation, the paper highlights not only the differences but also the shared concerns for people with intellectual disability living in the two countries, e.g. equal access to healthcare as experienced by the general population.
Findings
In spite of shared visions of inclusion and equality in mental health care, there are major differences in how both countries approach these issues. Recently this has been highlighted by significant shifts in policy. In Northern Ireland strategies designed to inform the delivery of evidence based services for the future have been witnessed. Whilst in England there has also been a move towards public protection within mental health legislation and the reaffirmation of the need to move towards more individual services. Whilst policy initiatives in both countries have been encouraging; they need to be implemented so issues such as access to healthcare and geographical disparity are addressed by local providers.
Social implications
Although there is a desire for change, the reality is that the policies and legislation introduced to address issues such as accessing mental health care and service standards have still to make a significant impact to people's daily lives.
Originality/value
This paper offers an update of current practice and policy relating to mental health for people with intellectual disabilities in England and Northern Ireland.
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Samantha Flynn and Chris Hatton
This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern…
Abstract
Purpose
This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales.
Design/methodology/approach
Data were collected directly from 621 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 378 adults with learning disabilities. The data were collected between December 2020 and February 2021 and concerned the use of health and social care services since the start of the first COVID-19 national lockdown in March 2020.
Findings
Access to and use of health and social care services significantly reduced for adults with learning disabilities across the UK during the COVID-19 pandemic between March 2020 and February 2021, with many people not receiving any services at all during that period. Similar patterns were seen across England, Northern Ireland, Scotland and Wales. However, data suggest some variations between countries for some services.
Practical implications
Future pandemic planning must ensure that access to these essential services is not completely lost for adults with learning disabilities and their family carers, as it was in some cases during the COVID-19 pandemic in 2020.
Originality/value
This is the largest study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. The authors primarily collected data directly from adults with learning disabilities, and worked with partner organisations of people with learning disabilities throughout the study.
Details
Keywords
The following classified, annotated list of titles is intended to provide reference librarians with a current checklist of new reference books, and is designed to supplement the…
Abstract
The following classified, annotated list of titles is intended to provide reference librarians with a current checklist of new reference books, and is designed to supplement the RSR review column, “Recent Reference Books,” by Frances Neel Cheney. “Reference Books in Print” includes all additional books received prior to the inclusion deadline established for this issue. Appearance in this column does not preclude a later review in RSR. Publishers are urged to send a copy of all new reference books directly to RSR as soon as published, for immediate listing in “Reference Books in Print.” Reference books with imprints older than two years will not be included (with the exception of current reprints or older books newly acquired for distribution by another publisher). The column shall also occasionally include library science or other library related publications of other than a reference character.